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Useful information on the world wide web
  1. A L Scheffler
  1. Chicago, Illinois, USA a-scheffler-1{at}alumni.uchicago.edu

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    Compiled by A L Scheffler

    Web based information about patient safety and quality improvement—both popular and academic—is proliferating rapidly as the quality/safety movement gathers momentum in the United States, Australia, the UK, New Zealand, Canada, Scandinavia, Switzerland, and elsewhere around the world. One may ask—how useful is this online information? Who accesses it, for what ends, with what outcomes? How well does it translate across national, cultural, linguistic, professional, and disciplinary boundaries? And are patients safer because of it? We lack even tentative answers to such questions at present.

    Online resource updates

    Quality and Safety in Health Care will sort through the onslaught of online articles, reports, and opinions on patient safety and healthcare quality, and periodically summarize them on our website. In addition, the print edition of QSHC will provide summary guides to electronic resources on particular topics and themes. These may include cultural factors that promote or hinder the creation of safer health care; the potential of patient advocacy efforts to improve patient-provider communication and avoid unnecessary litigation; and lessons from non-medical research disciplines, such as organisational behavior, human factors engineering, and risk perception and communication. We will spotlight these issues using an interdisciplinary and international approach that draws on the perspectives of relevant stakeholders in different health systems: patients, their families and caregivers, nurses, pharmacists, social workers, physicians, risk managers, laboratory technicians, health services researchers, quality managers, advocates, policy makers, system and facility managers, and journalists.

    Sites for sore eyes

    To begin, we provide a list of selected websites featuring patient safety and healthcare quality information and documents. This list is meant to be suggestive only—a starting point for a rich journey of discovery and learning. None of these sites stands alone; each offers links to other sites and sources.

    Agency for Healthcare Research and Quality (http://www.ahrq.gov/qual/errorsix.htm) ▸

    AHRQ currently coordinates all US federal research on patient safety; in October 2001 it announced $50 million in new grants (http://www.ahrq.gov/news/press/pr2001/patsafpr.htm). AHRQ (pronounced “arc”) also chairs the Quality Interagency Coordination Task Force (or QuIC), whose February 2000 report “Doing what counts for patient safety: federal actions to reduce medical errors and their impact” (http://www.quic.gov/report/index.htm) was a direct response to the Institute of Medicine's 1999 “errors” report. The QuIC convened public and private funders of safety research for a high profile National Summit on Medical Errors and Patient Safety Research in September 2000; invited and public testimony at the summit (http://www.quic.gov/summit/index.htm) has informed AHRQ's subsequent research agenda.

    American Hospital Association (http://www.aha.org/PatientSafety/Safe_home.asp) ▸

    The AHA, representing some 6000 US hospitals, has placed clinical quality and patient safety at the top of its public advocacy agenda.

    American Society for Healthcare Risk Management (http://www.ashrm.org/asp/home/PDF/whitepaper.pdf) ▸

    ASHRM, an affiliate of the American Hospital Association, published “Perspective on disclosure of unanticipated outcome information” in April 2001.

    Anesthesia Patient Safety Foundation (http://www.apsf.org/) ▸

    The APSF was founded in 1984 “to ensure that no patient shall be harmed by anesthesia”. Its quarterly newsletter is available online.

    Australian Council for Safety and Quality in Health Care (http://www.safetyandquality.org/) ▸

    Australian health ministers appointed this panel in January 2000 “to lead national efforts to improve the safety and quality of health care”. The Council issued its “First national report on patient safety” in August 2001 (http://www.safetyandquality.org/pdfs/firstreport.pdf).

    Australian Patient Safety Foundation (http://www.apsf.net.au/index.html) ▸

    The foundation published a major report “Iatrogenic injury in Australia” in October 2001. It is not yet online, but a summary is available at http://www.apsf.net.au/NewsletterMar01.pdf.

    Bristol Royal Infirmary Inquiry (http://www.bristol-inquiry.org.uk/final_report/index.htm) ▸

    This July 2001 report—an exhaustive investigation of bad outcomes in paediatric cardiac surgery—is a treasure trove of material on the professional and organizational roots of adverse medical events. Drill down into the archived testimony to find many excellent submissions from safety specialists.

    British Medical Journal (http://www.bmj.com/) ▸

    BMJ published its comprehensive theme issue on medical error in March 2000 (http://bmj.com/cgi/content/full/320/7237/725).

    Canadian Provincial Court of Manitoba (http://www.pediatriccardiacinquest.mb.ca/) ▸

    The November 2000 inquest report by Judge Murray Sinclair found “a failure of quality assurance and monitoring of the Health Sciences Centre Pediatric Cardiac Surgery Program” after 12 children died there in 1994. This land breaking report is a blueprint for reforming postgraduate oversight of physicians.

    Critical Incidents Reporting System (http://www.anaesthesie.ch/cirs/) ▸

    Dr Sven Staender at the University of Basel facilitates the CIRS, “an anonymous and international forum on critical incidents in anaesthesiology”.

    Department of Health (http://www.doh.gov.uk) ▸

    In June 2000 the DoH released “An organization with a memory: report of an expert group on learning from adverse events in the NHS” (http://www.doh.gov.uk/orgmemreport/index.htm). This document “examines the key factors at work in organisational failure and learning” and recommends “creation of a new national system for reporting and analysing adverse health care events, to make sure that key lessons are identified and learned . . .”. A follow on report “Building a safer NHS for patients” (http://www.doh.gov.uk/buildsafenhs/index.htm) outlines in greater detail a “new national system for learning from error and adverse events”. The National Patient Safety Agency (http://www.npsa.org.uk/html/npsa.htm) was launched in October 2001 to operate the new reporting system.

    General Accounting Office (http://www.gao.gov/archive/2000/he00021.pdf) ▸

    GAO released “Adverse drug events: the magnitude of health risk is uncertain because of limited incidence data” at a US Senate hearing in January 2000.

    Institute for Healthcare Improvement (http://www.ihi.org/) ▸

    IHI is a leading international healthcare quality improvement organisation. It serves as the National Programme Office for the “Pursuing perfection” initiative funded by the Robert Wood Johnson Foundation (http://www.ihi.org/pursuingperfection/lnetwork/index.asp).

    Institute for Safe Medication Practices (http://www.ismp.org/) ▸

    Founded in the 1970s, ISMP focuses on helping hospitals, practitioners, and patients prevent medication related injuries and deaths. It publishes the biweekly Medication Safety Alert. ISMP has affiliates in Canada and Spain.

    Institute of Medicine (http://www.iom.edu/) ▸

    The massive media coverage given the IOM's November 1999 report “To err is human: building a safer health system” (http://www.nap.edu/catalog/9728.html) helped to move patient safety well up the US (and global) policy agenda for much of 2000. The “errors” report, as it came to be known, also generated intense and sometimes acrimonious debate among safety researchers about whether estimating the annual mortality attributed to medical errors was either valid or useful. In March 2001 the IOM released a major report on quality in health care “Crossing the quality chasm: a new health system for the 21st century” (http://www.nap.edu/catalog/10027.html). The IOM's 1998 JAMA article “The urgent need to improve health care quality” (http://jama.ama-assn.org/issues/v280n11/abs/jst80006.html) is still worth reading.

    Joint Commission on Accreditation of Healthcare Organizations (http://www.jcaho.org/ptsafety_frm.html) ▸

    The US based accrediting body's quality activities include its Sentinel Event Policy and revised Patient Safety Standards.

    Leapfrog Group (http://www.leapfroggroup.org/) ▸

    Launched in 2000 by large corporate purchasers of health benefits, the Leapfrog Group aims to advance the “business case for safety” by encouraging safer and higher quality hospital care.

    National Center for Patient Safety (http://www.patientsafety.gov/) ▸

    NCPS, part of the US Veterans Health Administration, is working to improve safety and quality across the system of veterans' health facilities by applying human factors principles and research on safe operation in high reliability organisations.

    National Coalition on Health Care (http://www.nchc.org/releases/medical_errors.pdf) ▸

    NCHC published “Reducing medical errors and improving patient safety: success stories from the front lines of medicine” in February 2000.

    National Patient Safety Foundation (http://www.npsf.org/) ▸

    NPSF is an independent nonprofit organisation founded in 1997 by the American Medical Association, 3M Healthcare, CNA HealthPro, and Schering-Plough. NPSF and its partners have convened a series of influential “Annenberg” conferences; the next conference is in Indianapolis in April 2002 (http://www.mederrors.org/). The NPSF also operates an active research program (http://www.npsf.org/html/research.html); publishes Focus, a quarterly newsletter (http://www.npsf.org/html/publications.html); maintains an extensive online bibliography (http://www.npsf.org/html/bibliography.html); and hosts a popular email discussion list and current literature awareness alert with more than 1200 subscribers as of February 2002 (http:[email protected]/archives/index.html).

    National Quality Forum (http://www.qualityforum.org/) ▸

    NQF is a non-profit, public-private membership organisation founded in 1999 to develop and implement a national strategy for health care quality measurement and reporting.

    New Zealand Ministry of Health (http://www.moh.govt.nz/moh.nsf/) ▸

    Recent reports include “Adverse events in New Zealand public hospitals: principal findings from a national survey” (December 2001) and “Toward clinical excellence: learning from experience” (September 2001).

    Swiss Task Force on Patient Safety (http://www.swiss-q.org/apr-2001/docs/Final_ReportE.pdf) ▸

    The task force released “Towards a safe healthcare system: proposal for a national programme on patient safety improvement for Switzerland” in April 2001.

    Videos

    • First, do no harm” (2000) is a dramatised case study of a healthcare system breakdown during the treatment of an obstetrics patient. (Available for purchase from Partnership for Patient Safety at http://www.p4ps.org/purchase_harm.html.)

    • Beyond blame” (1997) is a short documentary film on how medication errors affect all involved—practitioners and patients alike. (Available for purchase from Bridge Medical at http://www.mederrors.com/.)

    Call for citations

    This is but a beginning. Kindly help us close the gaps by submitting citations for online materials—research reports, journal articles, proposed or enacted legislation, interactive websites, archived listserve messages—which you have found to be particularly useful for improving quality, creating safety, or preventing harm to patients in some relevant context or setting. We will review these materials for possible inclusion in future updates. We especially welcome citations (preferably in English translation, where available) for materials originating outside the “developed” world. Please send your citations to Adam L Scheffler at a-scheffler-1{at}alumni.uchicago.edu.

    View Abstract

    • CyberSpace

      Issue 2 (18th April 2002)

      A L Scheffler

      Agency for Healthcare Research and Quality (US)
      Quality of health care: Q-Pack
      (http://www.ahrq.gov/consumer/pathqpack.htm) groups AHRQ�s quality and safety materials for consumers, including Spanish-language versions. In AHRQ focus on research: patient safety (http://www.ahrq.gov/news/focus/ptsafety.htm), the agency updates its patient safety portfolio.

      Commonwealth Fund (US)
      A new report by Karen Davis et al, Room for improvement: patients report on the quality of their health care (http://www.cmwf.org/programs/quality/davis_improvement_534.pdf), estimates that 8.1 million American households have at least one member who has experienced a serious medical or drug error. That figure is based on a survey of 6722 adults in 2001. The report states that "the Institute of Medicine report on medical errors, To Err Is Human: Building a Safer Health System, which reported 44,000 to 98,000 deaths annually, may be only the tip of the iceberg concerning the adverse health consequences for patients resulting from medical errors." See also from Reuters Health: "Missed opportunities, errors undermine health care" (http://www.reutershealth.com/archive/2002/04/16/eline/links/20020416elin039.html).

      ECRI (US)
      ECRI, with support from the American Association of Health Plans (AAHP) and Pfizer, Inc., has published Should I enter a clinical trial? A patient reference guide for adults with a serious or life-threatening illness (http://www.ecri.org/documents/bctoc2.html). A PDF version is also available (http://www.aahp.org/InternalLinks/CT_book.pdf).

      European Forum
      The "7th European Forum on Quality Improvement in Health Care" (organized by the BMJ Publishing Group and the Institute for Healthcare Improvement) took place in Edinburgh in March. In his closing keynote, IHI President Donald Berwick challenged delegates to develop interdisciplinary scientific centres worldwide "to study the sources of hazard and risk."

      Institute of Medicine (US)
      The anthrax vaccine: is it safe? Does it work?
      (http://www.nap.edu/catalog/10310.html) provides an expert assessment of the efficacy and safety of current US anthrax vaccine stores.

      Legislative hearing (US)
      On 7 March, the House Health Subcommittee held a hearing on "Health Quality and Medical Errors." Most members did not attend, and the hearing adjourned abruptly because of a competing vote on the House floor. The prepared testimonies of Donald Berwick of IHI, Karen Wolk Feinstein of the Pittsburgh Regional Healthcare Initiative, and other witnesses are archived at http://waysandmeans.house.gov/health/107cong/hl-13wit.htm. A web cast and transcript of the hearing are available at http://www.kaisernetwork.org/health_cast/hcast_index.cfm.

      Medicare Payment Advisory Commission (US)
      MedPAC�s report to the US Congress, Applying quality improvement standards in Medicare, (http://www.medpac.gov/publications/congressional_reports/jan2002_QualityImprovement.pdf), concludes that Medicare "has multiple tools to stimulate quality improvement efforts. It can: act as a regulator and establish standards and measures; act as a purchaser and reward high performance; act as an advisor and help plans and providers measure and improve care; and act as a researcher, either alone or in coordination with others such as the Agency for Healthcare Research and Quality (AHRQ), to further develop the science of quality improvement."

      National Patient Safety Agency (UK)
      The NPSA (http://www.npsa.org.uk/) was officially launched at a reception on 20 March. In a remark reminiscent of the late John Eisenberg, Lord Hunt (Under Secretary of State for Health) stated: "The National Patient Safety Agency is here to help."

      National Quality Forum (US)
      NQF (http://www.qualityforum.org/) is inviting public comment on two draft reports: Making healthcare safer for patients: evidence-based practices, and Nursing home performance measures. The site also provides an order blank for Serious reportable events in healthcare.

      National Surgical Infection Program (US)
      The Centers for Medicare & Medicaid Services (CMS) and the Centers for Disease Control and Prevention (CDC) are developing a national healthcare quality improvement project to prevent postoperative infections (
      http://www.surgicalinfectionprevention.org/). A current literature review is also available (http://www.surgicalinfectionprevention.org/literature.html).

      Patient Safety Reporting System (US)
      The Veterans Health Administration (VHA) is rolling out a medical incident reporting system (http://psrs.arc.nasa.gov/) that adapts methodology developed for aviation by NASA�s Ames Research Center in California. A brochure describes PSRS as a voluntary "learning program" that VHA staff may use to report "close calls," "unexpected serious occurrences that involved a death, physical injury, or psychological injury of a patient or employee," and "lessons learned or safety ideas" (http://psrs.arc.nasa.gov/web_docs/PSRS_Brochure.pdf).

      Scottish Executive (UK)
      The right medicine: a strategy for pharmaceutical care in Scotland
      (http://www.scotland.gov.uk/library3/health/pcis-00.asp) sets out a four-year action plan to modernise pharmacy services in Scotland. Plans for 2002 include establishing a Scottish Centre for Adverse Drug Reactions Reporting, and exploring "effective strategies to empower and inform patients and the public about medicines."

      Upcoming meetings
      "Patient Safety: Let�s Get Practical" � Indianapolis, 22�24 April 2002 (
      http://www.mederrors.org/).
       "Accountability in Clinical Research: Balancing Risk & Benefit" � Indianapolis, 24�26 April 2002 (
      http://www.researchsafety.org/). 
      "The Changing Health Care System: An Anglo-American Dialogue" � New York City, 25�26 April 2002 (
      http://www.nyam.org/events/hcaresystem.shtml). 
      "National Human Research Protections Advisory Committee" � Washington, DC, 29�30 April 2002 (
      http://ohrp.osophs.dhhs.gov/nhrpac/mtg04-02/agen0402.pdf). 
      "Patient Safety: Are We Doing Enough?" � Fremantle, Western Australia, 2�3 May 2002 (
      http://www.archi.net.au/conferencediary/FinalMay_Prog0404.pdf). 
      "Institute of Medicine Committee on Patient Safety Data Standards" � Washington, DC, 6 May 2002 (
      http://www4.nas.edu/webcr.nsf/MeetingDisplay1/HCSX-H-01-05-A?OpenDocument). 
      "Who�s in the Driver�s Seat? Leading Efforts in Consumer-Centered Care" � Washington, DC, 15 May 2002 (
      http://www.facct.org/invite.htm). 
      "Chaos Collaboration Change: Improving Quality in Health Care" � Minneapolis, 16�17 May 2002 (
      http://www.icsi.org/colloq/intro.htm). 
      "International Summit on Innovations in Patient Safety" � Salt Lake City, 12�14 June 2002 (
      http://www.ihi.org/conferences/summit/pssummitindex.asp). 
      "Using Measurement and Evidence-Based Strategies to Improve Health Care" �
      Copenhagen, 19�21 June 2002 (http://www.jcrinc.com/education.asp?durki=573). 
      "10th Cochrane Colloquium" � Stavanger, Norway, 31 July�3 August 2002 (http://www.cochrane.no/colloquium/). 
      "International Conference on Communication in Healthcare" � Warwick University, 18�20 September 2002 (http://www.each2002.com/). 
      "2ndAsia Pacific Forum on Quality Improvement in Health Care" � Singapore, 11�13 September 2002 (http://web3.bma.org.uk/forms.nsf/confweb/JBEY-566EDN). 
      "Partnership Symposium 2002: Smart Designs for Patient Safety" � Washington, DC, 14�16 October 2002 (http://www.p4ps.org/symposium2002.html). 
      "19th International Conference of the International Society for Quality in Health Care" � Paris, 5�8 November 2002 (http://www.isqua.org.au/isquaPages/Conferences.html#Anchor-PARIS-11481). 
      "14th National Forum on Quality Improvement in Health Care" � Orlando, 8�11 December 2002 (http://www.ihi.org/conferences/natforum/justfacts02.asp).

      Update
      We were confused last issue in citing the work of the Australian Council for Safety and Quality in Health Care. The report published by the Council in August 2001 is Safety in practice: making health care safer (http://www.safetyandquality.org/articles/publications/cfsafety.pdf).

      Broken links
      CyberSpace
      tries to ensure that featured links (URLs) are working at the time of publication. However, sites change their content frequently; resources are moved, deleted, or go private; servers crash; and we make editorial mistakes. Please let us know about any broken or incorrect links you encounter in this issue.

      Adam L Scheffler is a freelance writer and policy researcher based in Chicago. He can be contacted at a-scheffler-1{at}alumni.uchicago.edu.

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