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A patient-centred instrument for assessment of quality of breast cancer care: results of a pilot questionnaire
  1. M de Kok1,
  2. H J M Sixma2,
  3. T van der Weijden3,
  4. A G H Kessels4,
  5. C D Dirksen4,
  6. K F J Spijkers2,
  7. C J H van de Velde5,
  8. J A Roukema6,
  9. F W C van der Ent7,
  10. C Finaly-Marais8,
  11. M F von Meyenfeldt1
  1. 1Department of Surgery, Maastricht University Medical Center, Maastricht, The Netherlands
  2. 2NIVEL-Netherlands Institute for Health Services Research, Utrecht, The Netherlands
  3. 3Department of General Practice, Centre for Quality of Care Research, Care and Public Health Research Institute (CAPHRI), Maastricht University Medical Center, Maastricht, The Netherlands
  4. 4Department of Clinical Epidemiology and Medical Technology Assessment (KEMTA), Maastricht University Medical Center, Maastricht, The Netherlands
  5. 5Department of Surgery, Leiden University Medical Center, Leiden, The Netherlands
  6. 6Breast Unit, St. Elisabeth Hospital, Tilburg, The Netherlands
  7. 7Department of Surgery, Orbis Medical Center, Sittard, The Netherlands
  8. 8Department of Surgery, Laurentius Hospital, Roermond, The Netherlands
  1. Correspondence to Mascha de Kok, Department of Surgery, Maastricht University Medical Center, PO Box 5800, 6202 AZ Maastricht, The Netherlands; m.dekok{at}ah.unimaas.nl

Abstract

Background In several breast cancer research environments, there was a need to develop a questionnaire that would (1) provide data on how breast cancer patients experience healthcare services, (2) address issues corresponding with patients' needs and expectations and (3) produce useful data for quality assessment and improvement projects aimed at breast cancer care. This article describes the first part of the quantitative process of item selection, instrument construction and optimisation based on the results of a pilot questionnaire.

Methods Based on qualitative research, a pilot questionnaire with items formulated as “performance” and “importance” statements was developed and sent to all breast cancer patients operated on in the previous 3–15 months in five participating hospitals. Reduction criteria, exploratory factor analysis and reliability analysis were used as part of the process of instrument optimisation.

Results Of the 637 questionnaires sent out, 299 (47%) were returned and 276 (43%) were used for analyses. Out of the 72 quality items included in the pilot questionnaire, 42 items did not meet the inclusion criteria for the revised version. The remaining items refer to the factors patient education regarding aspects related to postoperative treatment, services by the breast nurse, services by the surgeon, patient education regarding activities at home and patient education regarding aspects related to preoperative treatment (Cronbach α=0.70–0.89).

Conclusions In this study, the number of items to be included in the self-administered questionnaire was reduced. The resulting set of items that determines patients' perceptions on quality of breast cancer care is easy to complete and enables anonymous responses. Further research can be aimed at establishing the reliability of the current questionnaire.

  • Breast cancer
  • health services needs and demand
  • multicentre studies
  • patient participation
  • pilot study
  • surgery
  • patient satisfaction
  • research
  • healthcare quality
  • patient-centred

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Footnotes

  • Funding This work was supported by ZonMw (The Netherlands Organisation for Health Research and Development) and Grow (Research Institute Growth and Development).

  • Competing interests None.

  • Patient consent Obtained.

  • Ethics approval This study was conducted with the approval of the Maastricht University Medical Center, Maastricht, The Netherlands; St. Elisabeth Hospital, Tilburg, The Netherlands; Laurentius Hospital, Roermond, The Netherlands; Leiden University Medical Center, Leiden, The Netherlands; and Orbis Medical Center, Sittard, The Netherlands.

  • Provenance and peer review Not commissioned; externally peer reviewed.

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