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ONLINE REPORT IN REAL TIME FROM THE NATIONAL PROSTATE CANCER REGISTER (NPCR) OF SWEDEN, A NEW AND EFFICIENT TOOL FOR QUALITY ASSURANCE
  1. Pär Stattin1,
  2. Fredrik Sandin2,
  3. David Örtqvist2,
  4. Lena Damber3,
  5. Erik Holmberg4,
  6. Håkan Cederberg4,
  7. Mats Lambe2
  1. 1Department of Urology, Umeå University Hospital, Sweden
  2. 2Regional Cancer Center (RCC) Uppsala/Örebro Uppsala University Hospital
  3. 3RCC North, Umeå University Hospital
  4. 4RCC West, Sahlgrenska Academy, Göteborg

Abstract

Introduction Traditionally data in The Swedish Cancer register, The Patient Register and other health care registers have been characterized by a very high capture rate but a very long time between date of reported event and final report. However for quality assurance a rapid ascertainment and reporting is crucial.

Methods We developed an online report in real time in INCA, a software for Internet Based Cancer Registration, with graphical views, developed in R, exactly identical to those used in the NPCR annual report (www.npcr.se/rapporter).

Results The user can assess data for his/her own department, and compare with all 21 counties in Sweden, and mean for the nation for procedures and outcomes in real time. These data include waiting times between referral and first consultation, time between biopsy procedure and cancer information (Figure 1), selection of treatment, surgical outcome (positive margins) and many other pertinent aspects of cancer care. Data were made available in October 2013 for clinicians.

Discussion These online data can be used for quality assurance, quality improvement and bench marking. The real time reporting system increases the need for rapid registration of data in NPCR in order to make optimal use of the system.

Figure 1

Waiting times in own hospital (red) and all counties (blue) and mean for nation (“riket” yellow)

Declaration of competing interests This research was funded by the Swedish Research Council.

  • Patient safety
  • Mortality (standardized mortality ratios)
  • Patient education

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