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Standards for UNiversal reporting of patient Decision Aid Evaluation studies: the development of SUNDAE Checklist
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  • Published on:
    People with intellectual disabilities and Patient decision aids
    • Bernadette Flood, Pharmacist Daughters of Charity Disability Support Services Dublin

    The population with intellectual disabilities have multiple morbidities and greater health needs compared with the general population. This population experiences health and healthcare inequities and inequalities. To reduce the health inequality gap people with intellectual disabilities should be involved as partners in their healthcare. This will require access to relevant information and the development of tools that support collaboration, such as tailored patient decision aids (PDA) (1).
    The population with intellectual disabilities is rarely considered or involved (2)at the guideline development stage. The consequent failure of clinical guidelines to adequately address the health needs of people with intellectual disabilities exacerbates already poor access to health and healthcare. An examination of clinical guidelines from seven countries(3) found that most clinical guidelines failed to address people with intellectual disabilities as being at high risk for particular conditions when appropriate.
    Guidelines and PDAs developed with the general population in mind may not reflect the complexity and multi-morbidity of individual patients with intellectual disabilities and their ‘real world’ lives. Many people with intellectual disabilities have visual, hearing, mobility, memory and dexterity difficulties. Clinicians and guidelines developers may not be aware of the complexity of the task their ask their patients with intellectual disabilities and their...

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    Conflict of Interest:
    None declared.