State of health and perceived burden in patients on the waiting list for up to 6 months and their informal caregivers (n=19)
| T1 | T2 | T3 | T4 | |
|---|---|---|---|---|
| Note: higher scores reflect more negative outcomes, except for MOS subscales where higher scores denote more positive outcomes. | ||||
| T1 = registration on the waiting list; T2 = 1 month later; T3 = 2 months later; T4 = 6 months on the waiting list; IDDD = Interview for Deterioration in Daily Living Activities in Dementia; RMBPC = Revised Memory and Behaviour Problem Checklist; MOS= Medical Outcome Study; SPPIC = Self-Perceived Pressure from Informal Care Scale; CES-d = Center for Epidemiology Scale—depression. | ||||
| Patients | ||||
| IADL problems (IDDD) | 33.1 (8.1) | 34.4 (6.5) | 36.8 (5.5) | 38.3 (4.9) |
| Memory problems (RMPBC) | 20.5 (6.0) | 19.9 (5.6) | 19.1 (5.9) | 20.3 (4.9) |
| Disruptive behaviour (RMBPC) | 3.5 (3.3) | 2.5 (4.3) | 1.4 (2.8) | 0.7 (2.2) |
| Depressive symptoms (RMBPC) | 8.3 (6.0) | 5.3 (6.2) | 3.3 (5.0) | 1.1 (3.0) |
| Caregivers | ||||
| Health perceptions (MOS-20) | 59.4 (16.6) | 57.1 (17.7) | 56.1 (19.4) | 52.8 (22.8) |
| Physical functioning (MOS-20) | 54.6 (31.2) | 42.6 (32.5) | 50.0 (37.1) | 44.7 (31.0) |
| Role functioning (MOS-20) | 75.0 (39.3) | 65.8 (47.3) | 47.2 (49.9) | 68.4 (41.5) |
| Social functioning (MOS-20) | 77.8 (29.8) | 74.7 (30.4) | 65.9 (27.2) | 73.7 (27.5) |
| Mental health (MOS-20) | 59.6 (14.9) | 58.7 (15.7) | 57.3 (20.5) | 53.9 (14.4) |
| Perceived burden (SPPIC) | 6.1 (1.9) | 6.1 (2.1) | 5.4 (3.2) | 6.6 (1.9) |
| Depressive symptoms (CES-d) | 15.7 (8.4) | 14.4 (9.8) | 15.6 (10.3) | 18.3 (8.8) |