Table 1

Health Belief Model: contents of the transition notebook

Domains	Notebook content
Perceived susceptibility Not aware of current respiratory status, BMI or microbiologic profile and its effects on long term health	Graphs of pulmonary function tests, BMI, and sputum microbiology data are reviewed with clinician
Perceived severity Not aware of the consequences of CF disease	Prepared material selected based on per patient/provider discussion including graphs from CFF patient registry, antibiotic information, infertility, nutrition, etc
Perceived benefits Not aware of the benefits of CF treatment	Graphs of pulmonary function when healthy versus sick and potential impact of pulmonary exacerbations. BMI correlation with lung function
Perceived barriers No time to do chest therapy No time to take enzymes	Calendar to monitor and encourage airway clearance therapies Schedules for time management Discuss ways to incorporate enzymes with meals
Cues to action May forget to keep track of symptoms May forget medications	Calendar insert to record daily health status or symptoms and to remind patient to take medications and do chest therapy and chart completed therapies Medication list to remind patient of medications
Self-efficacy Not sure they can do all their treatments Not sure how to contact their providers	‘To do list’ to set small but stepwise goals, reviewed by clinician Business card holders for multiple specialists/provider numbers for patients to have easy access to their provider