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Patients’ experiences of an open access follow up arrangement in managing inflammatory bowel disease
  1. A Rogers1,
  2. A Kennedy1,
  3. E Nelson1,
  4. A Robinson2
  1. 1National Primary Care Research and Development Centre, The University of Manchester, Manchester M13 9PL, UK
  2. 2Department of Medicine, Hope Hospital, Salford M6 8HD, UK
  1. Correspondence to:
 Professor A Rogers
 National Primary Care Research and Development Centre, The University of Manchester, Manchester M13 9PL, UK;


Background: Improving access is a key policy issue in improving quality of care and extending patient choice and participation. People’s experience of changing from fixed outpatient appointments to more flexible direct access arrangements for chronic disease has been underexplored.

Objectives: To examine patients’ views on using an open system of access compared with fixed outpatient appointments as part of a guided self-management intervention for inflammatory bowel disease (IBD).

Design: Embedded qualitative study undertaken alongside a randomised controlled trial. Semi-structured interviews were undertaken to obtain an in depth understanding of patients’ experience of the change in access arrangements.

Participants: A purposive sample (n = 30) was drawn from the intervention group (n = 700) according to a range of responses to the trial baseline and follow up quantitative measures.

Results: 28 interviews were included in the analysis. Compared with the previous system of fixed appointments, preference for the new open access system was based on enhanced personal control in contacting services and the view that it fitted better with everyday routine management and the requirement for urgent medical contact when symptoms fail to respond to medication. Preference for retaining fixed appointments was based on a sense of security from gaining access which did not require the individual to initiate the request for medical help.

Conclusions: Open access may fit better with patients’ self-management of their condition and everyday routines, roles and responsibilities. Ensuring that outpatient organisational arrangements and personnel are responsive to patient initiated requests for appointments is likely to impact on the acceptability of this type of access arrangement. Some people may continue to prefer the fixed appointment system which should be retained if patient choice is to be respected.

  • patients’ views
  • open access
  • chronic disease

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  • Funding: Health Technology Assessment Board. The National Primary Care Research and Development Centre is funded by the Department of Health. The views in this paper are those of the authors. The guarantor accepts full responsibility for the conduct of the qualitative study, had access to the data, and controlled the decision to publish.

  • Competing interests: none

  • AK, AR and ARob were involved in the design of the qualitative study. EN conducted the interviews. AR, AK and EN undertook the analysis and interpretation of results. AR and AK drafted the paper. AK, ARob, and AR were grant holders. AR is the guarantor.