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Mapping search terms to review goals is essential
  1. Friedemann Geiger1,2,
  2. Marla L Clayman3,4,
  3. Isabelle Scholl5,
  4. Katrin Liethmann6,7,8,
  5. Jürgen Kasper9
  1. 1Department of Pediatrics, University Medical Center Schleswig-Holstein, Kiel, Germany
  2. 2Medical School Hamburg, Department of Psychology, Faculty of Human Sciences, Hamburg, Germany
  3. 3American Institutes for Research, Chicago, Illinois, USA
  4. 4Akershus University Hospital, Lørenskog, Norway
  5. 5Department of Medical Psychology, University Medical Center Hamburg-Eppendorf, Hamburg, Germany
  6. 6Unit of Health Sciences and Education, University of Hamburg, Hamburg, Germany
  7. 7Department of Medical Psychology and Medical Sociology, University Medical Center Schleswig-Holstein, Kiel, Germany
  8. 8Department of Neurology, Institute of Neuroimmunology and Multiple Sclerosis, University Medical Center Hamburg-Eppendorf, Hamburg, Germany
  9. 9Department of Health and Caring Sciences, Faculty of Health Sciences, University of Tromsø, Tromsø, Norway
  1. Correspondence to Professor Dr Friedemann Geiger, Klinik für Allgemeine Pädiatrie, Universitätsklinikum Schleswig-Holstein, Schwanenweg 20, Kiel D-24105, Germany; f.geiger{at}

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Patient participation can be seen as an end in and of itself, and it can be seen as a way to foster further goals like quality and safety in healthcare, adherence and cost-effectiveness. Wide-scale implementation of interventions to increase patient participation without having confidence in its measures means being unable to determine if implementation was successful or the desired outcome was achieved. Therefore, we were pleased to see a review of measures assessing patient participation in healthcare.

However, we have some major concerns about the conceptual approach, the method and the conclusions in the …

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  • Competing interests All authors have published at least one of the instruments that were omitted in this review. Furthermore, IS published a systematic review of measures that assess shared decision-making.2

  • Provenance and peer review Commissioned; internally peer reviewed.

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