Footnotes

• X @drchellemd

• Contributors All authors contributed substantially to the design and conception of the manuscript by sharing their ideas during meetings with said purpose. LAA is responsible for the overall content as the guarantor and drafted the abstract, introduction, background, and conclusion and revised all drafts. BK drafted the recommendations, table, and figures and revised all drafts. SMO reviewed all drafts and contributed substantial revisions to all sections of the manuscript. TLH reviewed all drafts and contributed substantially to the manuscript’s content on engagement with community partners. LD reviewed all drafts and contributed substantially to revisions of the recommendations section. SK contributed substantially to the drafting and revisions of content on partnering with patients and families. AAC offered substantial revisions to manuscript drafts with a focus on the manuscript’s audience, data-sharing platforms, tables and figures. KMB wrote content for each draft and served as the senior author providing guidance throughout each stage of the conceptualisation and writing process. All authors approved the final version of the manuscript for publication and agree to be accountable for all aspects of the work.

• Funding This study was funded by Health Resources and Services Administration (U7AMC337170100).

• Competing interests None declared.

• Provenance and peer review Not commissioned; externally peer reviewed.