TableĀ 1

Five elements that lead to activating patients, families and professionals for the coproduction of improved care

ReadinessBe ready mentally and emotionally to engage in improving care. Realise that the ability to engage may change over time as the challenges of living with a chronic disease change
CuriosityAsk questions and seek answers. Identify sources of trustworthy information that include professionals, parents and people living with the disease
ReframeTurn challenges into opportunities for learning and improvement. Practice seeing situations from various points of view, looking for ways to identify possibilities and resources for improvement rather than barriers and people to blame
Listen and learnSeek out new knowledge and ideas. Listen and learn from the experiences of others, bringing the best ideas home for testing, trial and adaptation for local improvement
ParticipateBe present and personally participate. Improvement is a team effort and takes time and commitment to see measured results