Manually coded positive and negative comments, estimated and actual algorithm-retrieved comments and mean EQ5D scores
| Category | Manually coded comments (n=800) | Estimated algorithm-retrieved comments from remaining dataset (n=4834) | Actual algorithm-retrieved comments from remaining dataset (n=4834) | Actual algorithm-retrieved comments (n=1688) | Mean EQ5D score | Mean difference between all comments and category/subcategory (EQ5D score) | ||||
|---|---|---|---|---|---|---|---|---|---|---|
| (n=) | % | (n=) | % | (n=) | % | (n=) | % | 1.0 or less | t (p, CI) | |
| All comments | 800 | 100 | 4834 | 100 | 4834 | 100 | 1688 | 100 | 0.78 | |
| Positive and negative comments combined | 333 | 37 | 1714 | 35.4 | 1688 | 34.9 | 1688 | 100 | ||
| Positive experiences | 248 | 31 | 1436 | 29.7 | 1045 | 21.6 | 1045 | 61.9 | 0.85 | 0.07 (p≤0.001, 95% CI 0.05 to 0.09) |
| Timely diagnosis | 109 | 6.4 | 0.90 | 0.12 (p≤0.001, 95% CI 0.09 to 0.16) | ||||||
| Good quality post-treatment care | 289 | 17.1 | 0.88 | 0.09 (p≤0.001, 95% CI 0.08 to 0.12) | ||||||
| Negative experiences | 85 | 10.6 | 491 | 10.1 | 643 | 13.3 | 643 | 38.0 | 0.74 | 0.05 (p≤0.001, 95% CI 0.02 to 0.07) |
| Delayed diagnosis | 36 | 2.1 | 0.73 | 0.05 (p=0.298, 95% CI 0.05 to 0.15) | ||||||
| Inadequate post-treatment care | 191 | 11.3 | 0.71 | 0.07 (p=0.002, 95% CI 0.02 to 0.11) | ||||||
| Poor inpatient care | 45 | 2.6 | 0.74 | 0.03 (p=0.423, 95% CI 0.05 to 0.12) | ||||||
| Lack of coordinated care | 78 | 4.6 | 0.76 | 0.02 (p=0.536, 95% CI 0.04 to 0.08) | ||||||
| Lack of emotional support | 78 | 4.6 | 0.87 | 0.04 (p=0.100, 95% CI 0.01 to 0.10) | ||||||
| Lack of information on treatment side-effects | 160 | 9.4 | 0.74 | 0.04 (p=0.034, 95% CI 0.00 to 0.08) | ||||||
| Lack of information concerning possible psychological impact of cancer and treatments | 43 | 2.5 | 0.69 | 0.09 (p=0.073, 95% CI 0.01 to 0.19) | ||||||
| Lack of information on self-management strategies | 135 | 7.9 | 0.79 | 0.01 (p=0.581, 95% CI 0.03 to 0.06) | ||||||
| Lack of GP involvement | 52 | 3.0 | 0.73 | 0.05 (p=0.167, 95% CI 0.02 to 0.13) |
Individual participants often provided free-text comments that were coded into more than one category.
GP, general practitioner.