Reporting and completion of experience-based codesign activities, duration and fidelity of included studies in chronological publication order
| Reference | Experience gathering | Film | Feedback events | Joint SP/SU workshop | Small teams | Celebration event | EBCD fidelity | Duration (months) | ||||
| Obs (hours) | With SP (n) | With SU (n) | With SP (n) | With SU (n) | SP (n) | SU (n) | ||||||
| Bate and Robert cancer study11 | ✓(NR) | ✓(NR*) | ✓(NR*) | ✓ | ✓(NR) | ✓(NR) | ✓(NR) | ✓(NR) | ✓ | ✓ | 90% | NR |
| Bowen geriatric outpatient study43–46 | ✗ | ✓(9*) | ✓(13*) | ✓ | Unclear | Unclear | Unclear | Unclear | ✓ | ✓ | 80% | 12 |
| Boyd breast service study14 | ✗ | ✓(5†‡) | ✓(14†, 182‡) | ✓ | ✗ | ✗ | ✓(14) | ✓(12) | ✓ | ✗ | 50% | NR |
| Piper ED study32 47 | ~15–50/site | 80% | ||||||||||
| Programme 1 | ||||||||||||
| Site 1 | ✓(5) | ✓(54*) | ✓(20*) | ✗ | ✗ | ✗ | ✓(NR) | ✓(NR) | Unclear | Unclear | 9 | |
| Site 2 | ✓(5) | ✓(45*) | ✓(40*) | ✗ | ✗ | ✗ | ✓(NR) | ✓(NR) | Unclear | Unclear | 9 | |
| Site 3 | ✓(20) | ✓(28*) | ✓(16*) | ✗ | ✓(NR) | ✗ | ✓(NR) | ✓(NR) | Unclear | Unclear | 9 | |
| Programme 2 | ||||||||||||
| Site 1 | ✓(8) | ✓(36*) | ✓(19*) | ✗ | ✓(NR) | ✗ | ✓(NR) | ✓(NR) | Unclear | Unclear | 9 | |
| Site 2 | ✗ | ✓(30*) | ✓(22*) | ✗ | ✗ | ✗ | ✓(NR) | ✓(NR) | Unclear | Unclear | 9 | |
| Site 3 | ✓(20) | ✓(53*) | ✓(25*) | ✗ | ✓(NR) | ✗ | ✓(NR) | ✓(NR) | Unclear | Unclear | 9 | |
| Site 4 | ✓(13) | ✓(28*) | ✓(27*) | ✗ | ✓(NR) | ✗ | ✓(NR) | ✓(NR) | Unclear | Unclear | 9 | |
| Cheshire and Ridge palliative care study28 31 | ✗ | ✓(15) | ✓(NR§) | ✓ | ✗ | ✗ | ✓(7) | ✓(15) | ✓¶ | ✗ | 50% | 8 |
| Tsianakas cancer study24 | (219 total) | 100% | ||||||||||
| Breast cancer | ✓(NR) | ✓(37*) | ✓(23*) | ✓ | ✓(NR) | ✓(NR) | ✓(NR) | ✓(NR) | ✓ | ✓ | NR | |
| Lung cancer | ✓(NR) | ✓(26*) | ✓(13*) | ✓ | ✓(NR) | ✓(NR) | ✓(NR) | ✓(NR) | ✓ | ✓ | NR | |
| Locock ICU/cancer study26 34 48 | (42* total) | (46 total) | (49 total) | 100% | ||||||||
| ICU | ✓(NR) | ✓(NR) | ✓(78§) | ✓ | ✓(NR) | ✓(NR) | ✓(NR) | ✓(NR) | ✓ | ✓ | 8 | |
| Lung cancer | ✓(NR) | ✓(NR) | ✓(45§) | ✓ | ✓(NR) | ✓(NR) | ✓(NR) | ✓(NR) | ✓ | ✓ | 8 | |
| Gustavsson neonatal study27 49 50 | ✗ | ✓(7*) | ✓(5*) | ✗ | ✓(7) | ✓(5) | Unclear | Unclear | ✓ | ✓ | 90% | 9 |
| Fenton mental health study51–53 | ✗ | ✓(9*) | ✓(12*) | ✗ | ✓(NR) | ✓(NR) | (50 total) | ✓ | ✗ | 70% | NR | |
| ✓(NR) | ✓(NR) | |||||||||||
| Gustavsson diabetes study27 50 | ✗ | ✓(6*) | ✓(7*) | ✗ | ✓(6) | ✓(7) | Unclear | Unclear | ✓ | ✓ | 90% | 9 |
| Springham and Robert mental health study18 | ✗ | ✓(NR*) | ✓(NR*) | ✓ | ✓(NR) | ✓(NR) | ✓(NR) | ✓(NR) | ✓ | Unclear | 70% | 8 |
| Wright geriatric ED study22 30 54 | ✓(150**) | ✓(15*) | ✓(10*) | ✓ | ✓(64) | ✓(10) | ✓(7) | ✓(2) | ✗ | ✗ | 80% | 19 |
| Kenyon caesarean study55 | ✗ | ✓(22*) | ✓(15*) | ✗ | ✓(17) | ✓(7) | ✓(6) | ✓(5) | ✗ | ✓ | 80% | 12 |
| van Deventer paediatric study23 | ✓(10) | ✓(14*) | ✓(9*) | ✓ | ✓(24) | ✓(5) | ✓(16) | ✓(5) | ✓ | ✓ | 100% | 9 |
| Cranwell mental health study56–58 | ✗ | ✓(21†) | ✓(16*) | ✓ | ✓(17) | ✓(16) | ✓(6) | ✓(7) | ✗ | ✗ | 70% | NR |
| Cooper mental health study29 | ✗ | ✓(NR†) | ✓(6*) | ✓ | Unclear | ✓(6) | ✓(8) | ✓(4) | ✗ | ✗ | 60% | NR |
| Fucile cancer study59 | ✗ | ✓(9†) | ✓(6†) | ✗ | ✗ | ✗ | (15 total) | ✗ | ✗ | 40% | 8 | |
| ✓(NR) | ✓(NR) | |||||||||||
| Hackett mental health study60 | ✗ | ✓(14*, 4‡) | ✓(19*, 12‡) | ✗ | ✗ | ✗ | ✓(6) | ✓(11) | ✗ | ✗ | 50% | 18 |
| Weston cancer study61 | ✗ | ✓(6*) | ✓(6*) | Unclear | ✓(3) | ✓(3) | INC | INC | INC | INC | INC | INC |
| Knowles multimorbidity study25 | ✗ | ✓(5†) | ✓(38†) | ✓ | ✓(5) | ✓(11) | Unclear | Unclear | ✗ | ✗ | 70% | 4 |
✗ EBCD activity not completed.
✓ EBCD activity completed.
‘U nclear’ denotes insufficient information to determine whether the EBCD activity was completed.
*Interview.
†Workshop or focus group.
‡Survey.
§Sourced from a national archive of lung cancer patient interviews (n=45), ICU patient interviews (n=40) and ICU patient caregiver (n=38) interviews.
¶Service providers only.
**Non-participating site observation.
EBCD, experience-based codesign;ED, emergency department; ICU, intensive care unit; INC, incomplete EBCD; NR, not reported;Obs, observations; SP, service provider; SU, service user.